

Assessment of the level of health-preserving potential of families raising children with disabilities and special needs
https://doi.org/10.33667/2078-5631-2025-19-22-27
Abstract
Introduction. The article presents the results of a social and medical study conducted in 2025 based on the test methodology «Family audit of children’s health preservation», developed by the Institute’s staff in accordance with the Plan of the main events for holding the Year of the Family in the Russian Federation (item No. 77).
Aim. The purpose of the local study is to assess the level of health-preserving potential of families raising a child with disabilities and special needs and living in a municipal district.
Materials and methods. The main research method is a questionnaire survey of 110 parents with children (a child) with disabilities and special needs, and living in the Borovsky district of the Kaluga region.
Results. The levels (high, medium, low) of health-preserving potential of families raising a child with disabilities and special needs and living in the municipal district were identified.
Conclusion. Comparative analysis of data in each area makes it possible to determine priority risk factors for the health of children (child) in the family and to substantiate further necessary medical and preventive measures and give recommendations on the creation of hygienically optimal conditions for maintaining and strengthening the health of children (child) in the family.
About the Authors
P. I. KhramtsovRussian Federation
Khramtsov Petr I., DM Sci (habil.), pofessor, head of the Research Institute of Hygiene and Health Protection of Children and Adolescents
Moscow
M. P. Guryanova
Russian Federation
Guryanova Marina P., Dr Ped Sci, professor, chief researcher
Moscow
Zh. Yu. Gorelova
Russian Federation
Gorelova Zhanetta Yu., DM Sci (habil.), professor, chief researcher
Moscow
I. E. Alexandrova
Russian Federation
Alexandrova Irina E., DM Sci (habil.), head of laboratory
Moscow
A. M. Kurganskiy
Russian Federation
Kurganskiy Aleksandr M., PhD Med, leading researcher
Moscow
N. O. Berezina
Russian Federation
Berezina Nadezhda O., PhD Med, leading researcher
Moscow
References
1. Aleksandrova I.E. On the issue of medical activity of the modern schoolchild. In the book: Theses of the International Conference of VECA countries «Formation of a healthy lifestyle of schoolchildren in modern conditions», 2016. S. 5–6. (In Russ.).
2. Vohra R, Madhavan S, Sambamoorthi U, St Peter C. Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions. Autism. 2014 Oct; 18 (7): 815–26. DOI: 10.1177/1362361313512902. Epub 2013 Dec 18. PMID: 24353274; PMCID: PMC4908578.
3. Witt WP, Kasper JD, Riley AW. Mental health services use among school-aged children with disabilities: the role of sociodemographics, functional limitations, family burdens, and care coordination. Health Serv Res. 2003 Dec; 38 (6 Pt 1): 1441–66. DOI: 10.1111/j.1475-6773.2003.00187.x. PMID: 14727782; PMCID: PMC1360958.
4. Tekola B, Kinfe M, Girma Bayouh F, Hanlon C, Hoekstra RA. The experiences of parents raising children with developmental disabilities in Ethiopia. Autism. 2023 Feb; 27 (2): 539–551. DOI: 10.1177/13623613221105085. Epub 2022 Jun 25. PMID: 35757938.
5. Himuro N. Family-centered Care for Children with Disabilities in Japan-the Origin and Future of the «Ryouiku». Phys Ther Res. 2024; 27 (1): 1–5. DOI: 10.1298/ptr.R0029. Epub 2024 Mar 12. PMID: 38690529; PMCID: PMC11057391.
6. Healthy Children for the New School: Proceedings of the VIII All-Russian Scientific and Practical Conference with International Participation, Voronezh, October 25, 2024 / ed. team: S.V. Kornev [et al.]; respons. for the issue N.M. Kuvshinova. Voronezh: Voronezh State Pedagogical University, 2024. ISBN 978‑5‑907621‑85‑5. 350 p. Chekalova S. A., Tsybaeva E.I., Gorelova Zh. Yu. Features of education and socialization of children with disabilities in an educational organization. Pp. 316–318. (In Russ.).
7. Gorelova Zh. Yu. Features of food preferences of schoolchildren when choosing alternative nutrition for the prevention of alimentary-dependent diseases / Zh. Yu. Gorelova, Yu.V. Solovieva, T.A. Letuchaya. Medical alphabet. 2021; 21: 38–40. (In Russ.). https://doi.org/10.33667/2078‑5631‑2021‑21‑38‑40
8. Gorelova Zh.Yu. Study of home nutrition of Moscow schoolchildren. Zh. Yu. Gorelova, N. D. Bobrischeva-Pushkina. Nutrition Issues. 2018; 87 (S 5): 135–136. (In Russ.). DOI: 10.24411/0042‑8833‑2018‑10233. EDN YPDEMP.
9. Starostina L.S. The role of providing children with vitamins and minerals from the standpoint of a pediatrician / L.S. Starostina. RMJ. Mother and Child. 2020; 3 (4): 319–325. (In Russ.). DOI: 10.32364/2618‑8430‑2020‑3‑4‑319‑325
10. Guryanova M.P., Kotova N.I., Klochinova P.D. Social and pedagogical analysis of socialization in families of children with disabilities. Pedagogy. 2023; 10:41–50. (In Russ.).
11. Guryanova M.P., Khramtsov P.I. Family audit of child health preservation as a method for determining the health-preserving potential of the family. Russian Pediatric Journal. 2024; 27 (Supplement 3): 81. (In Russ.).
12. Guryanova M.P., Khramtsov P.I. Health-forming focus of child upbringing in the family. In the collection: «Modern aspects of health preservation»: collection of materials of the jubilee scientific and practical conference with international participation dedicated to the 60th anniversary of the medical and preventive faculty of the UO «BSMU», October 24–25, 2024, Minsk. edited by S.P. Rubnikovich, A.V. Gindyuk, T.S. Borisova. Minsk: BSMU, 2024. 734 p. (pp. 227–231). (In Russ.).
13. Guryanova M.P., Khramtsov P.I., Lashneva I.P., Gorelova Zh. Yu. Formation of health of preschool children in the family. Pedagogy. 2023; 4: 71–79. (In Russ.).
14. Guryanova M.P., Klochinova P.D. Characteristics of health-preserving behavior of parents raising children with disabilities. DEMIS. Demographic studies. 2024; 4 (3): 88–104. (In Russ.).
15. Kurgansky A.M., Guryanova M.P., Khramtsov P.I. Medical and socio-pedagogical risks of using digital devices by primary school children: an empirical study. Psychology and Pedagogy of RUDN University. 2023; 23 (3): 501–525. (In Russ.).
16. Guryanova M.P., Seppyanen T.P., Kurgansky A.M. Parental control over the safe use of gadgets and social networks for a child’s health / in the collection Man. Health. Environment: collection of materials from the Republican scientific and practical conference with international participation (Minsk, June 14, 2023) / ed. collective: E.O. Guzik et al. Bel MAPO, 2023. pp. 145–149. (In Russ.).
17. Guryanova M.P., Khramtsov P.I. Vector of actions: development of health-saving potential of the family / in the collection “Healthy children for a new school: materials of the VIII All-Russian scientific and practical conference with international participation (October 25, 2024, Voronezh)” / ed. collective. S.V. Kortnev (et al.); respons. for the issue. N.M. Kuvshinova. Voronezh: Voronezh State Pedagogical University, 2024. 350 p. (pp. 56–60).
18. Mastyukova E.M., Moskovkina A.G. Family education of children with developmental disabilities. Moscow: Humanitarian Publishing Center VLADOS. 2003. Pp. 30–44. (In Russ.).
19. Zhuravleva I.V. Adolescent health: sociological analysis. Moscow: Publishing House of the Institute of Sociology of RAS, 2002. P. 154–157. (In Russ.).
Review
For citations:
Khramtsov P.I., Guryanova M.P., Gorelova Zh.Yu., Alexandrova I.E., Kurganskiy A.M., Berezina N.O. Assessment of the level of health-preserving potential of families raising children with disabilities and special needs. Medical alphabet. 2025;1(19):22-27. (In Russ.) https://doi.org/10.33667/2078-5631-2025-19-22-27